Compassion Faces of MLD

The Premier Family Resource for Metachromatic Leukodystrophy Information & Support

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Supporting Compassion for families, Awareness, Research, and Education.


MLD Foundation was formed to support families affected by MLD. Facilitating Compassion became the core of the Foundation's four-pronged purpose statement. Unlike many other foundations that focus on raising money to fund research and the single-minded chase for a cure - which is an admiral calling and very necessary - MLD Foundation wants to make sure that the people devastated by MLD are not left without compassionate and practical support.

Whether it be a family devastated by a recent diagnosis of MLD and uncertain as to what to do next emotionally and physically, a family that lost a loved one years ago, or one of the hundreds of families living today with a MLD affected child, sibling, or spouse -- MLD Foundation has a clear goal to make sure that no one has to make this journey alone.

The compassionate thrust of MLD Foundation is carried out under the "MLD Family" banner in many ways -- periodic MLD Family Conferences™ and MLD Family Gatherings™ where families can, perhaps for the first time, meet other MLD affected families face to face; an on-line private discussion group where hundreds can gather to share their daily challenges, needs and experiences; and in the MLD Family pages where we can reach across the miles in a more personal way to get to know each other.

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