We C.A.R.E. Faces of MLD

The Premier Family Resource for Metachromatic Leukodystrophy Information & Support





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Supporting Compassion for families, Awareness, Research, and Education.
 


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The MLD Foundation is focused exclusively on MLD. We have four areas of purpose:

facilitating
Compassion
increasing
Awareness
influencing
Research
promoting
Education

Our slogan, "We C.A.R.E." comes from these four areas of purpose.

Two things differentiate the MLD Foundation from other MLD and leukodystrophy focused organizations ...

First is that we are specifically focused on MLD in all aspects of our work. Other foundations may support other diseases, related research, or more generally the whole basket of leukodystrophies. The MLD Foundation recognizes that MLD research needs to expand to include MLD, not just to hopefully spill over to benefit MLD - hence our purpose to influence research. Along with influencing organizations and existing sources of funds, the MLD Foundation does some direct funding of MLD-specific research as well.

Second, is that we are not just a fund-raising "machine" that raises money to fund research. The MLD Foundation is actively engaged in the lives of the families suffering with MLD and knows that these families must be supported while we work aggressively towards a cure for MLD.

The Directors have developed a detailed 5-year plan and are facilitating the growth of the organization. As the MLD Foundation grows in our base of support - people, talents and resources - we will be able to more aggressively achieve our goals.

The history of the MLD Foundation can be found here.

 

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