MLD Family Conference™ - MLD Foundation

To see the Conference Overview - click here

Online Registration closes February 18th.

2011 MLD Family Conference™ AGENDA Wellington New Zealand, Saturday February 26th Sponsored by the MLD Foundation as of Februrary 4th, 2011- subject to change
Saturday February 26th
12:30	Doors open - sign in & registration	Holiday Inn, 65 Featherston St., Wellington, Click to view map to hotel

13:00	Welcome & Introductions	Dean Suhr President, MLD Foundation

MLD 101 ... What is Metachromatic Leukodystrophy
13:15	What is MLD? - Neurology - Genetics - Testing - diagnosis, mutations Newborn Screening Preimplantation Genetic Diagnosis	tba
MLD Research & Therapy Updates ... the search for a MLD cure
14:00	Current Research Developing Therapies & Clinical Trials - Stem Cell Transplants - Enzyme Replacement Therapy - Gene Therapy - Substrate Reduction	Dean Suhr, President & Co-Founder, MLD Foundation Teryn Suhr, Executive Director & Co-Founder, MLD Foundation
14:45	break
Practical Living with MLD ... the practical aspects of day to day life with MLD
15:00	Panel & Group Discussion on various aspects of caring for a loved one with MLD. - Orthopedics - Pain management - Medications - Hospice - Resources	- Dr. Esko Wiltshire, Pediatrician - Advanced Pediatrics, Cleveland OH - Dean Suhr, President & Co-Founder, MLD Foundation - Teryn Suhr, Executive Director & Co-Founder, MLD Foundation - other panelists tba
17:30	break
17:50	Resources - Make a Wish Foundation - MLD Foundation - Lysosomal Diseases New Zealand	- tba - Teryn Suhr, Executive Director & Co-Founder, MLD Foundation - John Foreman, Chairman, Lysosomal Diseases New Zealand
18:30	Hosted Group Dinner	Holiday Inn
20:00	MLD After Hours	Room tba
Sunday, Februrary 27th Hotel checkout is 11:00am.
Thank you to our collaborators, donors, & grant providers: Lysosomal Diseases New Zealand, Shire HGT, Mac's Team, and Olivia's Walk who through their collaboration, donations, and grants are making this conference much more affordable for the attending families. We also wish to thank the individual families for their donations to the scholarship fund.

Questions?
Contact Dean Suhr <deansuhr@MLDfoundation.org> +1 503-656-4808, USA: 1-800-617-8387, or FAX +1 503-212-0159

This conference is being organized by the MLD Foundation. Check with your tax advisor about the deductibility of any expenses associated with this conference.

3D Animated Flags--By 3DFlags.com