The MLD Foundation is a 501 (c)(3) non-profit organization. We were formed in May 2001 to serve families affected by metachromatic leukodystrophy (MLD), a terminal genetic condition affecting people throughout the world.
Our slogan, "We C.A.R.E" reflects our culture of Compassion, Awareness, Research and Education.
Donations to the MLD Foundation are tax deductible and will be used to further activities in one of these four areas.
The MLD Foundation's Board represents a variety of experiences and perspectives from parents to doctors and includes several outside professionals to assure that the MLD Foundation remains focused and accountable for all of its philosophical and financial actions. The Board consists of 6 people:
Dean Suhr, President & Board Chair ... MLD parent and cofounder of the MLD Foundation
Teryn Suhr, Executive Director ... MLD parent and cofounder of the MLD Foundation
Rob Teach ... Senior Vice President of US Bank, Commercial Lending
Lawrence Charnas, M.D., Ph.D. ... Neurologist ... Assistant Professor, Department of Pediatrics, Clinical Neuroscience Division, University of Minnesota
Wilson W. Smith III ... Creative Design Director, Nike
Yvette Earley ... a parent of MLD affected twin boys. Yvette is a registered nurse with extensive hands on MLD and health care experience