Care of Your MLD Family Member

• this topic is under development - most of these links will take you off-site and some may cease to exist as others chage their web sites. Please suggest new links you would like to see here.
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  Care of your MLD family member
  • Enteral Feeding
  • 
    G & J Tubes
    • PEG - percutaneous endoscopic gastrostomy tube
    • PEJ - percutaneous endoscopic jejunostomy tube placement
    • Picture of J-Tube
    • Information - Management of enteral nutrition
    • G-Tube Procedure
    • G-Tube - excellent drawing
    • G-Tube Care Notes - from a MLD mom
    • G-Tube Tips
    • G-tube Care
    • "Mickey" PEG no dangling tube - just a simple button
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    Reflux & Fundoplication
    • What is it?
    • Fundoplication
    • Fundoplication surgery - very technical
    • Links & Support
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  Drugs and Metachromatic Leukodystrophy
  • Drug - what pill is this?
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  Physical Therapy, Scoliosis, etc.
• additional topics and organization underway