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If you wish to make a tax-deductible donation now, please click below or go to our donations page.
If you want to know about metachromatic leukodystrophy (MLD), you've come to the right place! We C.A.R.E., we welcome you, and we're glad that you have found us!
Often your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD. We want you to know that you can count on us for support, information and to help you get connected with others who are also on the MLD journey.
Be sure to check out all of what we have to offer. Compassion will take you to the MLD Family where you can connect with others. Awareness is where you will find what is being done to increase knowledge of MLD and how you can help. Check out Research to find the latest in efforts to treat and cure MLD. Education leads to MLD-101 where you will find a comprehensive, yet very readable, layman's overview of MLD.
The MLD Foundation is a non-profit 501(c)(3) organization and appreciates your generous support. Please check out our Fund-raisers and MLD Stuff in the boxes below:
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Shaken & Stirred, New York 4/22
Walk for Olivia, Phoenix 5/17 Appalachian Trail for MLD, 2008 Miles for Mia, 6/14 MN Recent Events: If you wish to make a tax-deductible donation now, please click below or go to our donations page. |
April 24, 2008 - Shire HGT has aquired Metazym from Zymenex. Shire will continue to drive rapidly to market with Phase II trials. more here April 24, 2008 - GINA , the Genetic Information Nondiscrimination Act, passed the Senate 95-0. Learn more here. April 15, 2008 - Zymenex receives
Orphan Drug Status for Metazym from the FDA. March, 2008 - The
MLD Family Conference videos from the Boston 2007 MLD Family Conference can be seen
here. March 10, 2008 - February 26, 2008 - US Natural History Study is now recruiting late infantile patients. See here for details on the criteria and principal investigator. January 31, 2008 - Substrate Reduction Therapy research study is recruiting patients. * NDA = non-disclosure agreement |
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