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Please help us raise funds at no cost to you!
If you wish to make a tax-deductible donation now, please click below or go to our donations page.
If you want to know about metachromatic leukodystrophy (MLD), you've come to the right place! We C.A.R.E., we welcome you, and we're glad that you have found us!
Often your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD. We want you to know that you can count on us for support, information and to help you get connected with others who are also on the MLD journey.
Late infantile families ...
A MLD Natural History study is
currently recruiting in North Carolina.
More information here.
A MLD Natural History study is
currently recruiting in North Carolina.
More information here.
Be sure to check out all of what we have to offer. Compassion will take you to the MLD Family where you can connect with others. Awareness is where you will find what is being done to increase knowledge of MLD and how you can help. Check out Research to find the latest in efforts to treat and cure MLD. Education leads to MLD-101 where you will find a comprehensive, yet very readable, layman's overview of MLD.
The MLD Foundation is a non-profit 501(c)(3) organization and appreciates your generous support. Please check out our Fund-raisers and MLD Stuff in the boxes below:
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iRace 5k for MLD June 6, Bountiful, UT
2nd Annual Golf for MLD Research June 28, Jacksonville, IL 2nd Annual Devon Ray Walk for MLD July 11, Eugene, OR Post your upcoming MLD event here. Please let us know what you have planned. Recent Events: Walk & Lunch Auction May 2, Avon BrdWlk, NJ If you wish to make a tax-deductible donation now, please click below or go to our donations page. |
March, 2009 - ERT Phase I/II Clinical Trial results released. The safety and dosing results of the Shire ERT (Zymenex Metazyme) have been released - and some enzyme made it to the cerebral spinal fluid. more here MLD Family Conference Sept, 2008 - Shire HGT announces the completion of the Phase II Clinical Trial for safety and efficacy in Europe. Participants are now on compassionate use sustaining dosages of HGT-1111. We are awaiting an update on the start of Phase II trials in the US. more here April 24, 2008 - Shire HGT has acquired Metazym from Zymenex. Shire will continue to drive rapidly to market with Phase II trials. more here May 11, 2008 - GINA , the Genetic Information Non-discrimination Act, was signed into law. Learn more here. |
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