Enzyme Therapy Clinical Trial
NOW RECRUITING ... Ambulatory late-infantiles.
More information here.
Gene Therapy Clinical Trial
NOW RECRUITING ... pre-symptomatic late infantile and early/pre-symptomatic juveniles.
More information here.
If you want to know about metachromatic leukodystrophy (MLD), you've come to the right place! We C.A.R.E., we welcome you, and we're glad that you found us!
"... we have a call in to
pediatrician and I know she wll ask, what advice are you getting on the [MLD Family Dicsussion List™] group? I think that about says it all on how valuable this group is."
Often your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD. We want you to know that you can count on us for support, information and to help you get connected with others who are also on the MLD journey.
Keep up to date ...
Sign up for periodic (4-5/yr) MLD Foundation updates via email
by clicking here.
WE C.A.R.E. ...
* Compassion will take you to the MLD Family where you can connect with others.
* Awareness is where you will find what is being done to increase knowledge of MLD and how you can help.
* Research updates the latest in efforts to treat and cure MLD.
* Education leads to MLD-101 where you will find a comprehensive, yet very readable, layman's overview of MLD.
The MLD Foundation is a non-profit 501(c)(3) organization and appreciates your generous support. Please check out our Fund-raisers and MLD Stuff in the boxes below:
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DONATE NOW!
If you wish to make a tax-deductible donation now, please click above or go to our donations page.
NEW - specify your Memorial or
In-Honor-of gift.
Shopping On-Line?
Please help us raise funds at no cost to you!
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MLD Family Conference™ dates fro 2012 have not been announced yet.
January, 2012 - Shire HGT starts recruiting for intrathecal ERT Clinical Trial.
MEDIA
Sept, 2009 - Empowering Our Children radio interview with Christine Hoffman and Dean suhr. Listen here
* NDA = non-disclosure agreement
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